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IL Conference News

RSVP for the 2026 Independent Living Conference

You’re invited to the 2026 Massachusetts Independent Living Conference!

Conference details:
Wednesday, September 23, 2026
8:30 am – 3:30 pm
Best Western Royal Plaza Hotel & Trade Center
181 Boston Post Road West, Marlborough, MA 01752

RSVP details:
RSVP at https://masilc.formstack.com/forms/2026ilconference_registration

Registration for the conference is free of charge, however priority is given to staff from the 10 Independent Living Centers and appointed members of the Massachusetts Statewide Independent Living Council.
The registration deadline for the conference is September 9, 2026.

Individuals who are requesting communication access should register as soon as possible. Requests received after September 2nd, 2026 may not be guaranteed.  

Workshops:
Morning workshops – Please choose one when registering.  

  • Unhoused and Unconnected: Meeting the challenge of housing stability for people with disabilities
    • Presenter: Angela Clarke, Community Counseling of Bristol County, Inc.
    • Description: This workshop first offers an overview of the homeless system, provides clarity around understanding the trauma responses of those facing homelessness and considers solutions in meeting housing needs for those unhoused. The workshop reviews  definitions of housing instability and homelessness across different funding sources and helps participants understand how to access services throughout the Commonwealth.
  • Looking Ahead – Non-college Options after High School
    • Presenter: Leslie Leslie, Federation for Children with Special Needs
    • Description: Students with disabilities attend postsecondary education or training at rates far lower than their peers without disabilities. There are many options that lead to good careers. Explore certificate and license programs, 2 year degrees, apprenticeships, corporate training, military and federal service training as well as volunteer options.
  • Empowering the Disability Vote: A Guide for Advocates
    • Presenter: Brianna Zimmerman, Disability Law Center
    • Most Americans believe that voting is an important part of being a good citizen, and researchers agree that there are social, economic, and health benefits to voting. People with disabilities are just as interested in voting as their nondisabled peers; however, they are less likely to vote and three times more likely to encounter barriers to voting. In this interactive workshop, we will provide an overview of the rights of Massachusetts voters with disabilities; share information about accessible voting options; and brainstorm creative strategies to empower the disability vote in our everyday work. (All are welcome to join, whether you are new or experienced to getting out the disability vote!)
  • Unraveling the Mysteries of Guardianship Alternatives
    • Presenters: Lee Larriu, Sandy Heller, and Betsy Johnson, Massachusetts Developmental Disabilities Council 
    • Description: This session, Demystifying Guardianship Alternatives, breaks down the legal, practical, and ethical landscape of decision making supports available before guardianship becomes necessary. Participants will explore a range of less restrictive options such as supported decision making, powers of attorney, representative payees, and learn how these tools can preserve autonomy while still providing needed protection. The presentation clarifies when each alternative is appropriate, how they function in real world scenarios, and what families, professionals, and individuals should consider when choosing the right level of support. The goal is to replace confusion with confidence and empower attendees to make informed, person-centered decisions.

Afternoon workshops – Please choose one when registering. 

  • Navigating Mental Health Through an Independent Living Lens
    • Presenter:  Jill Gichuhi, NAMI
    • Description: Supporting people who are experiencing mental health symptoms can be challenging, especially when systems feel complex or hard to navigate. This workshop is about ways to support people at different points in their mental health journey, with a focus on choice and self-determination. We’ll start by looking at how people experience mental health in different ways, including how they define their own needs and what support actually feels helpful to them. We’ll also look at the mental health system and how different kinds of support fit together. We’ll also look at situations that can make things more complex, like high distress, hard-to-follow communication, or when someone seems stuck or disengaged. We’ll talk through how to respond in those moments while still holding clear, respectful boundaries.
  • Consumer Housing Workshops & How to Adjust to Changing Consumer Needs
    • Presenters: Sam Larue, Southeast Center for Independent Living, Steve Stollberg, Your Access Advocates,  Andy Forman, Boston Center for Independent Living, and Cindy Ribeiro,  Southeast Center for Independent Living
    • Presented in partnership with the MolinaCares Foundation
    • Description: This workshop explores the role of consumer housing workshops in the provision of Independent Living Center services and how to better engage consumers in these educational sessions. Consumer housing workshops are an integral part of the I&R process for Independent Living Centers, establishing a baseline understanding of what consumers can expect staff to help them with and how the Independent Living philosophy works. However, many Massachusetts centers have reported a decrease in consumer engagement with the workshops over the past year, despite the continuation of the accessible affordable housing crisis. A panel of three Independent Living staff engage with this contradiction in a moderated discussion, talking about how they approach leading housing workshops and how centers can improve engagement with consumers through format changes. This discussion follows up on months of outreach and collaboration between staff from all 10 Massachusetts Independent Living Centers and the Statewide Independent Living Council as part of a project to address fluctuations in consumer housing needs over the past 2 years.
  • Making It Meaningful: Fostering Active Participation for High-Support-Needs Youth in Independent Living Programs
    • Presenters: Maddie Heavey and Maximo Pimentel,  Boston Center for Independent Living
    • This workshop will explore practical strategies for supporting youth with high support needs in meaningful participation in independent living programs. Participants will learn how to create inclusive, accessible programming that promotes choice, self-determination, and engagement for youth with diverse support and communication needs. Topics will include instructional strategies, differentiation, adapting materials and activities, and supporting communication and participation. Attendees will leave with practical tools and strategies to make independent living programs more inclusive, engaging, and accessible for all youth.
  • Preparing for Emergencies
    • Presenters: Jamie Barry and Fernando Calderon,  Massachusetts Emergency Management Agency
    • The workshop is geared towards individual/family planning for emergencies with considerations for those in the independent living community. This workshop could be helpful for an individual that has an access or functional need as well as those that support them.
Categories
News

We want to hear from you!

State Plan for Independent Living Public Input 

Español abajo
Português abaixo

The Massachusetts Statewide Independent Living Council (MASILC) wants to know what is most important to people with disabilities, their families, and their communities. Your answers will help set the direction of the next State Plan for Independent Living (SPIL). 

We want to hear from you! Please share your thoughts in any of the below ways:

Questions? Please contact MASILC at 508-620-7452 or info@masilc.org

Español

El MASILC quiere saber qué es lo más importante para las personas con discapacidades, sus familias y sus comunidades. Los resultados de la encuesta ayudarán a establecer la dirección del próximo Plan Estatal de Vida Independiente.

Por favor, comparta sus ideas de cualquiera de las siguientes formas:

¿Preguntas? Por favor, comuníquese con MASILC al 508-620-7452 o a info@masilc.org

Português

O MASILC quer saber o que é mais importante para as pessoas com deficiência, para as suas famílias e para as suas comunidades. Os resultados da pesquisa ajudarão a definir a direção do próximo Plano Estatal de Vida Independente.

Por favor, compartilhe suas opiniões de qualquer uma das formas abaixo:

Dúvidas? Entre em contato com a MASILC pelo 508-620-7452 ou pelo info@masilc.org.

Categories
ADA Celebration News

RSVP to ADA Day!

Celebrate 36 years of the Americans with Disabilities Act!

Friday, July 31st, 2026
11am – 3:00 pm
Dunn State Park
289 Pearl Street, Gardner, MA 01440
Rain or Shine!

Please RSVP by July 16 at:
https://masilc.formstack.com/forms/2026adaday

Hike, kayak, swim, listen to music and hang out with friends! Light lunch and drinks provided.

DCR’s Universal Access Program will host accessible hiking and kayaking with partners from All Out Adventures and Waypoint Adventure.

ASL will be provided for those needing assistance accessing accessible activities. Parking is limited so carpooling is encouraged!

Thank you to the sponsors who make this event possible: My Ombudsman, Tempus Unlimited, Inc., United Health Care, Waymo, Molina Healthcare, Easter Seals, Independence Associates, 1199SEIU United Healthcare Workers East, Your Access Advocates, Heart to Home Meals, Institute for Human Centered Design, Bay State Wheelers, and the Massachusetts Office on Disability

Categories
IL Ed Day News

Independent Living Education Day 2026

Independent Living Education Day was held on Thursday, April 23rd in the Great Hall at the State House.

Speakers included:

  • MCs: Nancy Garr-Colzie and Desi Forte, Chair and Vice Chair of the SILC and Rachael Cowan, Stavros
  • Senator Robyn Kennedy
  • Manny Guerra, Your Access Advocates
  • Representative Mindy Domb 
  • Rob Bilotta, Worcester City Council 
  • James McKenzie, UnStuck: A Community in Motion
  • Brian Kleckner, Legislative Director for Representative Jim O’Day
  • Jessica Cimini, Director of Excellence and Innovation, MassAbility 
  • Stella McLaughlin, Easterseals Massachusetts

Photos by Jason Montgomery of Stavros Center for Independent Living

Categories
News Policy

PCA Education Day

On November 20th, 2025 MASILC members joined the Personal Care Attendant (PCA) Workforce Council and SEIU1199 for a PCA Appreciation and Legislator Education Day at the State House.

MASILC members joined other consumer employers and PCAs to share their personal narratives with legislators about the importance of the PCA Program.

MASILC members & staff at PCA Education Day Pictured (L-R Matt Pellegrino, Steve Higgins, Andrew Brown, Desi Forte, Nancy Garr-Colzie, Aliza Levine)

Categories
Report News Policy

The 2025 Accessible Affordable Housing Report is out

For the second year running, MASILC has assembled a report about the state of Massachusetts’s affordable, accessible housing shortage. The report features data from the Housing Navigator, and personal stories about the impact of the shortage from consumers of the Massachusetts Independent Living Centers.

From the report: “There is a growing need for housing units that serve Massachusetts’ aging and disabled populations. With the actual cost difference between standard and accessible housing units being negligible, creating more accessible affordable housing will allow people with disabilities to live in the communities of their choice, elders to age in place, and communities to benefit.”

Please read and share the 2025 report: Understanding the Housing Crisis through a Disability Lens: A Crisis within a Crisis, Revisited

Categories
IL Conference News

2025 IL Conference

The 2025 MA Independent Living Conference was held on September 16.

The conference is geared towards staff from the 10 Independent Living Centers and appointed members of the Massachusetts Statewide Independent Living Council. 

A conference flyer is available here.

View of the main conference room

Agenda

Welcome and MA Commissioner Presentations

  • Welcome by MASILC Chair Nancy Garr-Colzie and Vice Chair Desiree Forte
  • Commissioner John Oliveira, Massachusetts Commission for the Blind (MCB)
  • Commissioner Opeoluwa Sotonwa, Massachusetts Commission for the Deaf and Hard of Hearing (MCDHH)
  • Deputy Commissioner Kate Biebel, MassAbility
  • 10:15 am: Workshop Session I
  • 11:30 am: Lunch & Keynote by Jessica Podesva, Director of Advocacy and Public Policy at the National Council on Independent Living (NCIL)
  • 1:00 pm: Workshop Session II
  • 2:30 pm: Closing Session: Reflect & Connect led by Noel Sanders, Senior Community Organizer at Boston Center for Independent Living and Benji Kemper, Community Organizer, Center for Living & Working

Participants will have the opportunity to attend one workshop in each session.

Workshop Session I

Jill Gichuhi, Compass Helpline Manager, NAMI Massachusetts

Supporting People in Times of Mental Health Crisis

Jill Gichuhi, Compass Helpline Manager, NAMI Massachusetts

Supporting someone who may be experiencing a mental health crisis can be challenging, especially when systems feel complex or disempowering. This presentation will explore ways to support people navigating mental health crisis – before, during, and after it happens – with a focus on autonomy and self-determination. We’ll start by unpacking what “crisis” can mean from different perspectives. We’ll also introduce tools that people can use before a crisis that can help them retain some control and communicate preferences, and then explore key supports that people can access during times of crisis. We’ll also share practical strategies for responding supportively in the moment.

Bridging the Gap: Tools, Perspectives, and Collaborative Solutions for Affordable & Accessible Housing in Massachusetts

Presenters: Victoria Decker, Community Manager, Housing Navigator MA and Jordan Stocker, Senior Policy Associate, CHAPA

This engaging presentation will equip attendees with practical knowledge and tools to address the urgent need for affordable and accessible housing in Massachusetts. Led by co-presenters Victoria Decker of Housing Navigator MA and Jordan Stocker of CHAPA, this session goes beyond theory to provide actionable insights and real-world solutions for our state.
We’ll review how we get here, and then explore the housing data, access, and production that are vital to our path forward. We’ll conclude with updates from the ILC Housing Working Group efforts and invite you to engage in a collaborative dialogue on ways to plug in. This is your chance to share perspectives, discuss challenges, and contribute to collective strategies that will help bridge the gap for folks across the Commonwealth.

Victoria Decker, Community Manager, Housing Navigator MA and Jordan Stocker, Senior Policy Associate, CHAPA
Dara Sok, Rebecca Davis and Debora Curella from the Federation for Children with Special Needs (FCSN)

Culturally Responsive Engagement for Authentic Connection with Families and Young Adults

Our presentation introduces some best practice approaches to build culturally responsive engagement with families and addresses culturally specific stigma about disability that support professionals may face when working with diverse families.

Presenters: Dara Sok, Rebecca Davis and Debora Curella from the Federation for Children with Special Needs (FCSN)

Authentic engagement between families/young adults and the professionals supporting them is the key to positive life outcomes for young adults with disabilities. Bias, miscommunication, and lack of information about cultural differences can be obstacles to authentic engagement. FCSN, the MA Statewide Family Engagement Center, developed a Family Engagement Framework with the input and guidance of a 500 member coalition (including 11 state agencies, various sectors, and Education and Health and Human Services secretaries). Our outreach team members have lived experience as families of youth with disabilities and provide authentic voices on disability stigma in their communities.

Our presentation introduces some best practice approaches to build culturally responsive engagement with families and addresses culturally specific stigma about disability that support professionals may face when working with diverse families.

Dispelling Myths: SSI, SSDI and Work

Presenter: Brian Forsythe, Work Without Limits

This workshop will review the basics of disability benefits offered by the Social Security Administration for individuals with disabilities, such as SSI and SSDI, including eligibility requirements, major differences between the two programs, and the effect of work income on these benefits. We will also review and discuss some of the most common myths associated with working while receiving Social Security and other public benefits. Finally, we will establish that work is possible while receiving disability benefits, and review some of the community resources available to assist individuals to transition to work while successfully managing their benefits.

Brian Forsythe, Work Without Limits

Keynote

Jessica Podesva, Director of Advocacy and Public Policy at the National Council on Independent Living (NCIL)

Jessica Podesva, Director of Advocacy and Public Policy at the National Council on Independent Living (NCIL)

Jessica Podesva, Director of Advocacy and Public Policy at the National Council on Independent Living (NCIL)

Workshop Session II

Meghan Chapman, Federation for Children with Special Needs

Preventing and Managing Workplace Stress

Presenter: Meghan Chapman, Federation for Children with Special Needs

Imagining that we can do the work of supporting people in crisis and not feeling stress is like believing we can walk through water and not get wet. Let’s explore ways we can better prevent and manage workplace stress: setting and maintaining boundaries with consumers and colleagues; using self-compassion and mindfulness practices; and knowing where you can turn for mental health support.

Sally English, Executive Director, AdLib and Valerie Pease, Advocate, AdLib amd Emi Bailey, AdLib

Successful transportation advocacy: working with Regional Transit Authorities

Presenters: Sally English, Executive Director, AdLib and Valerie Pease, Advocate, AdLib, and Emi Bailey, AdLib

During the planning process for the FY 2025-2027 State Plan for Independent Living, CIL leaders identified the need for more cross-state collaboration within the disability community on transportation advocacy goals to make systemic change in accessibility in MA’s fractured transportation system (a Boston-area system plus 15 Regional Transit Authorities (RTAs)). CIL leaders planned to increase the capacity of the CIL network to maximize transportation advocacy by forming a new statewide coalition focused on advancing accessible, affordable transportation.

From Questions to Confidence: Navigating Vocational Rehabilitation (VR)

Presenters: Sarah Wiles and Naomi Goldberg, Client Assistance Program at Massachusetts Office on Disability

The Client Assistance Program (CAP) is an independent and confidential resource, which helps people understand and use vocational rehabilitation (VR) and independent living (IL) services. CAP can explain what Vocational Rehabilitation (VR) and Independent Living (IL) services are. CAP can also work with people to make sure they are making the most of these services to get, keep, and advance in employment. This workshop is for people with disabilities applying for or currently receiving Vocational Rehabilitation (VR) Services (sometimes called Career Services), their families, and anyone else interested to learn how VR works. During this workshop, participants will learn what VR is and how it works, why the employment goal and the Individualized Plan for Employment (IPE) are so important, simple tips for moving through the VR process, and how the Client Assistance Program supports individuals in the VR program.

Sarah Wiles and Naomi Goldberg, Client Assistance Program at Massachusetts Office on Disability
Sophie Korpics, Community Advocate, NILP

From Stigma to Strength: Supporting Youth in Disability Advocacy

Presenters: Mertine Holland, Employment Coordinator for Youth with Disabilities, BCIL and (pictured left) Sophie Korpics, Community Advocate, NILP

This workshop covered the barriers to youth and young adults with disabilities engaging in self- advocacy, how media influences the way young people see themselves, and how we can build allyship that truly empowers youth with disabilities.

Reflect & Connect

For the last activity of the day, participants were asked to sit with different people. Noel Sanders, Senior Community Organizer at Boston Center for Independent Living and Benji Kemper, Community Organizer, Center for Living & Working, led the activity, where participants discussed their experiences of disability community and within the Independent Living network.

More photos

Exhibitors

Categories
ADA Celebration News

ADA Day 2025

Attendees celebrated 35 years of the Americans with Disabilities Act! Activities included hiking, kayaking, swimming, listening to the Tommy Filiault Band and hanging out with friends. Delicious sandwiches and drinks were provided.

Friday, August 1, 2025
Dunn Pond State Park
289 Pearl St, Gardner, MA 01440

Accessible hiking and kayaking were hosted by DCR’s Universal Access Program and their partners Waypoint Adventure and All Out Adventures.

Thank you to the sponsors who make this event possible! My Ombudsman, Tempus Unlimited, Easter Seals MA, 1199SEIU Healthcare Workers East, Independence Associates, Institute for Human Centered Design, Bay State Wheelers, and Massachusetts Office on Disability.

Categories
IL Ed Day News

Independent Living Education Day 2025

Independent Living Education Day was held on Wednesday, April 2nd in the Great Hall at the State House.

Speakers included:

  • MCs: Nancy Garr-Colzie and Desi Forte, Chair and Vice Chair of the SILC 
  • Jessica Podesva, NCIL
  • Senator Robyn Kennedy
  • Representative Christine Barber
  • Jim Wice, Boston Self Help Center 
  • Representative Lindsay Sabadosa
  • Destiny Maxam of the Disability Policy Consortium
  • Representative Jim O’Day
  • Representative Mindy Domb 
  • Andrea Freeman, Transportation for Massachusetts
  • Nataly Barrato, Easter Seals
  • Rosa Rodriguez, Director of Home and Community Life at Mass Ability
  • Steve Higgins, Independence Associates and Clerk of the SILC

Photos by Jason Montgomery from STAVROS (with some contributions by Sadie Simone).

Categories
Report News Policy

Accessible Affordable Housing Report

In the summer and fall of 2024, MASILC gathered stories from consumers and staff from the Massachusetts Independent Living Centers about accessible affordable housing in the State.

These stories, along with data from the Housing Navigator, were gathered into a report called “A Crisis Within A Crisis: Stories of the Accessible Affordable Housing Shortage in Massachusetts.”