Celebrate 35 years of the Americans with Disabilities Act! Hike, kayak, swim, listen to music and hang out with friends. Light lunch and drinks provided.
Friday, August 1, 2025 11:00 AM – 3:00 PM Dunn Pond State Park 289 Pearl St, Gardner, MA 01440
Accessible hiking and kayaking will be hosted by DCR’s Universal Access Program.
ASL will be provided for assistance accessing accessible activities and for the short speaking program.
Independent Living Education Day was held on Wednesday, April 2nd in the Great Hall at the State House.
Speakers included:
MCs: Nancy Garr-Colzie and Desi Forte, Chair and Vice Chair of the SILC
Jessica Podesva, NCIL
Senator Robyn Kennedy
Representative Christine Barber
Jim Wice, Boston Self Help Center
Representative Lindsay Sabadosa
Destiny Maxam of the Disability Policy Consortium
Representative Jim O’Day
Representative Mindy Domb
Andrea Freeman, Transportation for Massachusetts
Nataly Barrato, Easter Seals
Rosa Rodriguez, Director of Home and Community Life at Mass Ability
Steve Higgins, Independence Associates and Clerk of the SILC
Photos by Jason Montgomery from STAVROS (with some contributions by Sadie Simone).
MCs: Nancy Garr-Colzie and Desi Forte, Chair and Vice Chair of the SILCJessica Podesva, NCILNancy Garr-ColzieRepresentative Robyn KennedyRepresentative Robyn KennedySenator Robyn KennedySenator Robyn KennedyRepresentative Christine BarberRepresentative Christine BarberRepresentative Christine BarberRepresentative Christine BarberDesi ForteJim Wice, Boston Self Help CenterRepresentative Christine BarberJim Wice, Boston Self Help CenterRepresentative Lindsay SabadosaDestiny Maxam of the Disability Policy ConsortiumRepresentative Jim O’DayRepresentative Mindy DombRepresentative Mindy DombRepresentative Mindy DombRepresentative Mindy DombAndrea Freeman, Transportation for MassachusettsAndrea Freeman, Transportation for MassachusettsNataly Barrato, Easter SealsNataly Barrato and Sam Gomez, Easter SealsRosa Rodriguez, Director of Home and Community Life at Mass AbilityRosa Rodriguez, Director of Home and Community Life at Mass AbilitySteve Higgins, Independence Associates and Clerk of the SILCIndependence Associates staff
In the summer and fall of 2024, MASILC gathered stories from consumers and staff from the Massachusetts Independent Living Centers about accessible affordable housing in the State.
July 26, 2021 marks 31 years of the Americans with Disabilities Act. MASILC marked the anniversary of signing of this landmark Civil Rights legislation with a virtual celebration on July 23. The 2021 Celebration was online only.
Agenda
Hosts: Maya Evohr and Cody Rooney
Welcome – Sadie Simone MASILC Coordinator
ADA Top 10 Video: Jake Quinn
Past Present and Future Interview: Austin Carr and Executive, Director of Mass Office on Disability Mary Mahon McCauley
Dance video: Katlyn Flaherty
Therapy Animals video: Emily Pacheco
CIL Panel Discussion on Anti- Racism: Taciana Ribeiro-Saab and Cecilia Nuñez
Visual Art: Erin McWalters
Poetry: Gigi Joseph
Closing remarks
Music Submission: Leon Legacy featuring Trevor Huntly
The welcoming presentations were by MA state disability commissioners.
Commissioner John Oliveira, MA Comm for the Blind (MCB)
Commissioner Opeoluwa Sotonwa, MA Comm for the Deaf and Hard of Hearing (MCDHH)
General Counsel Molly Karp for MassAbility
The lunchtime Keynote speaker was Carmen Rosado from Stavros CIL.
The closing speaker, Dominque Dunford, ED from ENDependence Center Northern VA (ECNV) spoke about “A CIL’s Journey Toward Greater Equity and Inclusion.”
Dominique shared why ECNV uses an equity and justice lens to guide its work serving people with disabilities throughout the Northern Virginia region and how it has embarked on setting a new path forward in its three-plus-year journey toward that mission. She shared best practices, insights, and pitfalls on their tough but rewarding journey.
Nancy and David (MASILC)Aliza (MASILC)Commissioner OliveiraCommissioner OliveiraCommissioner SotonwaCommissioner SotonwaCounsel Molly KarpBill Henning (BCIL)Basil and Carmen (STAVROS)Carmen (STAVROS)Nancy and Steve (MASILC)Dominque (ECNV)
Workshops
Participants attended one workshop per session
Workshop Session I
From Awareness to Action: Addressing Disability Stigma in Youth Engagement
Presenters: Danielle Daughtry, Federation for Children with Special Needs (FCSN) Transition Coordinator, Maddie Evans, FCSN’s Youth Engagement Coordinator, and Matthew Tricca, FCSN Youth Advisory Board member
This presentation will address the topic of disability disclosure – a very personal decision that can vary depending on the environment and an individual’s need for support. We will talk about the pros and cons of disability disclosure, how to approach disclosing a disability, and how to address challenges that may arise afterwards.
Transportation Advocacy Roundtable
Presenters:
Jen Healy, Quaboag Connector
Tara Lynne Southard and Kay Schoucair, Boston Center for Independent Living
Carmen Rosado, Stavros
Alexis Walls, MA Public Health Association
Advocates for affordable and accessible transportation will share advocacy victories and ongoing campaigns. Learn how you can be part of systems change for more accessible and affordable transportation in Massachusetts.
Peer Support for Mental Health Well-being
Presenters: Gabriel Fonseca, Director and Rachely Ramos, Operations Manager, Northeast Independent Living Program’s Recovery Learning Center
This presentation will dive into the importance of peer support and how it impacts meaningful connections that lead to mental well-being. An overview of peer support will be discussed, along with the resources available to promote such practices with the end goal of incorporating such benefits into the workforce.
Nuts & Bolts of Housing Search
Presenters: Andy Forman, Independent Living Public Benefits Advocate, Boston Center for Independent Living (BCIL) and Gabriella Lukas, Consumer Records Specialist, BCIL
Limited access to adequate housing especially impacts persons with disabilities who are often low-income and in need of specific accommodations. BCIL’s monthly Housing Workshop hosted by Andy Forman and Gabriella Lukas is designed to educate consumers on how to conduct their own searches for affordable and accessible housing. Come to this session to learn about the structure of the BCIL Housing Workshop and review the nuts and bolts of housing search for ILC consumers including:
The types of affordable and accessible housing available in Massachusetts (including state and federal voucher programs)
Tips for communicating with housing authorities and landlords
How to request reasonable accommodations for disabilities
From Awareness to Action: Addressing Disability Stigma in Youth EngagementFrom Awareness to Action: Addressing Disability Stigma in Youth EngagementFrom Awareness to Action: Addressing Disability Stigma in Youth EngagementFrom Awareness to Action: Addressing Disability Stigma in Youth EngagementTransportation Advocacy RoundtableTransportation Advocacy RoundtableTransportation Advocacy RoundtablePeer Support for Mental Health Well-beingPeer Support for Mental Health Well-beingPeer Support for Mental Health Well-beingNuts & Bolts of Housing SearchNuts & Bolts of Housing Search
Workshop Session II
Storytelling for the Independent Living Movement
Presenter: Benji Kemper, Community Organizer, Center for Living & Working
Experience the power of personal storytelling as a tool to connect with others and for advocacy in your community. Practice telling your personal story and learn about your colleagues as you share what motivates you to be part of the independent living movement during this interactive session.
Mindfulness for Everyday Living
Presenters: Lori-Ann Tessier, BA, Sociology, MA, Child Life & Susan Buchholz, BS, Human Services, Executive Director, HeartWell Institute
Mindfulness bridges the practices of meditation and compassion by fostering awareness and nurturing a deep sense of empathy towards oneself and others. Research underscores the capacity and transformative power of mindfulness to not only manage stress and enhance job satisfaction but also to cultivate a proactive, resilient and adaptive approach to the stressors of everyday life.
This presentation will dive into what hazards we face from natural and man-made disasters, how to prepare ourselves, and how to help others in our community prepare. This presentation will help those wanting to provide a preparedness presentation to others, including tools to create a plan and a kit.
Resources for Transition Aged Youth: Panel Discussion
Presenters
Erin Basler, Youth Services Coordinator, MetroWest Center for Independent Living
Anne Marie Rivers and Brandy Eder, Department of Developmental Services
Steve Michelson, Northeast Independent Living Program
Mike Dolan and Ken Davol, School-Based Transition Aged Services (TAS) at Keefe Technical High School
Transition Age Youth (TAY) have A LOT going on. For disabled students facing a drastic shift in how they use support services, this is often described as a cliff. However, with preparation and practice, TAY gain tools to navigate the change and direct their path into adulthood. Join a panel of professionals to learn the differences between Youth and Adult services, specific transition resources, and discuss how CILs can facilitate a smooth journey from youth to adult services.
Disability Community workshop Storytelling for the Independent Living MovementMindfulness for Every Day LivingDisaster Preparedness for the Disability CommunityResources for Transition Aged Youth: Panel Discussion
Conference Exhibitors
AhoiDignity AllianceDisability Law CenterEasterseals MAExec Off of Elder Affairs and SpringwellFederation for Children with Special NeedsMass PCA DirectoryMA Comm for the Deaf and Hard of HearingMA Dept of TransportationMA Office on DisabilityMassAbilityMy OmbudsmanPlanned Lifetime Assistance Network of MA and RI,Special Needs CompaniesWork Without Limits
This fall we listened to the input of people with disabilities (along with their families, friends, and service providers) from across Massachusetts to develop the new State Plan for Independent Living (SPIL).
The SPIL is a plan for how the state’s independent living programs and services will meet the independent living needs of people with disabilities in the state for the next three years.
This winter, we drafted the SPIL, and this spring, we’re sharing our work and receiving comments. There are two opportunities to comment:
Our celebration of the 34th Anniversary of the Americans with Disabilities Act was August 2, 2024 at Dunn Pond State Park in Gardner. We had not celebrated here since 2019. Even though it was another hot day, everyone had a great time!
Waypoint Adventure (hiking), All Out Adventures (kayaking) and DCR Universal Access Program partnered to supply accessible chairs and guides for hiking, as well as kayaking for anyone who wanted to go. Look at the smile on Tammy’s face in the photos if you want to know what that means.
Tommy Filiault Band entertained us all afternoon! We have enjoyed their music in Gardner since at least 2011!
Meg and Nicole from CLW DCR Staff DCR TableWaypoint Adventure My Ombudsman United Healthcare Table United Healthcare Joe (Easterseals MA and MWCIL Board), David (MWCIL) and Aliza ( MASILC) Tempus table Janna and Dan (MWCIL) Janna and Dan (MWCIL) NILP staff Tommy Filiault Band SCIL staff Nancy and CathyMarcy – UAP Program Manager (DCR) Tommy Filiault Band
two womenDavid (MWCIL) and Nancy (MASILC)Meg (CLW) and Aliza (MASILC)
Rose and Erin (MWCIL)Sadie (MWCIL) and Matt (NILP)CLW Staff
Welcome: Steve Higgins (Independence Associates) Brianna Zimmerman (STAVROS)
Senator Joe Comerford
Joe Tringali memorial
Estate Recovery and Spouses as Paid Caregivers
Representative Mindy Domb
Isaias Ruiz, PCA
Senate President Karen Spilka
Commissioner Toni Wolf, MA Rehabilitation Commission
Nancy Garr-Colzie re: PCAs
Representative Rob Consalvo (AHVP)
Ewidji Vincent, youth with Easter Seals
Senator Lydia Edwards
Nancy Garr-Colzie, MASILCSenate President Karen SpilkaRepresentative Mindy Domb
2024 Priorities
Summary of Priorities
Support Independent Living Centers
Accessible, affordable housing for people with disabilities
Accessible, affordable transportation for people with disabilities
Support the PCA program & workforce
Align MA AAB regulations with the ADA
Access to Assistive Technology and Durable Medical Equipment
Access to healthcare
Detailed Budget Priorities
Independent Living Centers Line Item 4120-0200 – $10 Million for 10 Independent Living Centers (increase of $2 million)
Maintain Funding for Personal Care Attendants
Increase the Alternative Housing Voucher Program funding (Line Item 7004-9030) to $30 million ($18.8m + Prior Appropriations continued) and incorporating H.1305 & S.884 into budget language.
Increase Accessible Affordable Housing Grants (Line Item 7004-9031), which offer grants to create or rehabilitate units into accessible housing prioritized for AHVP voucher holders to $2.5 million.
Increase MassAccess Registry funding (Line Item 4120-4001) to $300,000 to assist low-income people with disabilities to search for accessible housing.
Detailed Legislative Priorities
Building a More Accessible Massachusetts – S.1553: An Act Building a More Accessible Massachusetts and H.2291: An Act expanding the availability of adaptable housing for people with disabilities and seniors. These bills align MA accessibility regulations with federal regulations.
Estate Recovery – H.1168 and S.726: An Act protecting the homes of seniors and disabled people on MassHealth
Spouses as Paid Caregivers – H.216 and S.67: An Act allowing spouses to serve as caregivers
Support Regional Transit Authorities (RTA) – S.2277 and H.3272: An Act to increase regional transit accessibility in the Commonwealth
Changes to the Affordable Homes Act – The Independent Living Network supports The Affordable Homes Act (H.4138) as an opportunity to help alleviate the state’s housing crisis
MASILC is conducting a needs assessment survey to gather information about programs and services that provide support to individuals with disabilities in Massachusetts.
The survey responses will help to guide our planning process for the next State Plan for Independent Living (SPIL). The SILC, in collaboration with the Centers for Independent Living (CILs) and the Massachusetts Rehabilitation Commission, develops the State Plan for Independent Living (SPIL) every three years.
The SPIL is a three-year plan that sets goals and guides plans for the delivery of independent living services and systems advocacy in Massachusetts.